www.BHDSyndrome.org is the primary online reference site for anyone interested in BHD Syndrome, but as well as providing access to information, we have also been trying to cultivate an online BHD community through our online forum.
In order to keep the BHD community informed about scientific research being carried out on BHD Syndrome, we will soon be airing video interviews with scientists at the forefront of BHD Research.
You’ll be able to learn what their groups are currently doing, how they’re doing it and what their own opinions of current research are.
As well as serving the BHD community, I think this is a great way of advertising the excellent work being carried out and could aid to bring together and inform the scientific community too!
We’re really excited about this project, so watch this space!!!
