www.BHDsyndrome.org is not a website that likes to rest on it’s laurels and to that effect it’s been regularly updated with new and original content since it’s creation, ensuring that it becomes the primary online reference site for anyone interested in BHD Syndrome.
However, we’d like to get your feedback on the scientific aspect of www.BHDsyndrome.org, to see what we’re doing right, and perhaps what we could be doing better! If you have five minutes to spare, please head on over to our survey by follwing the link below.
Researchers Feedback Survey – here
We’re also aware that non-scientists like to read this blog, and if you’d like to leave your feedback too, follow the link for the ‘Families’ section:
Families Feedback Survey – here
www.BHDsyndrome.org – the primary reference site for anyone interested in BHD Syndrome.
ScienceBlog.com has no paywalls, no sponsored content, and no agenda beyond getting the science right. Every story here is written to inform, not to impress an advertiser or push a point of view.
Good science journalism takes time — reading the papers, checking the claims, finding researchers who can put findings in context. We do that work because we think it matters.
If you find this site useful, consider supporting it with a donation. Even a few dollars a month helps keep the coverage independent and free for everyone.